Music Therapy

Community Resources

The following are provided as potential resources. Their listing does not infer an endorsement of the site or group

Click here to learn more about “People First Care Coordination”

Adult Career and Continuing Education Services – Vocational Rehabilitation (ACCES-VR)

ACCES-VR was formally known as VESDI. This branch of the New York State Education Department offers a variety of programs to help students prepare for employment.

http://www.acces.nysed.gov/vr

Office of People with Developmental Disabilities (OPWDD)

OPWDD coordinates services for people in New York who have developmental disabilities through a network of nonprofit agencies. The Arc of Monroe is one of the nonprofit agencies that OPWDD oversees.

http://www.opwdd.ny.gov/

OPWDD Transition for Students with Developmental Disabilities

Resources for families who need more information about transitioning out of high school and into adult services

http://www.opwdd.ny.gov/opwdd_services_supports/children/transition-students-developmental-disabilities

OPWDD Eligibility

Individuals must meet OPWDD eligibility requirements to receive services from Arc of Monroe. This website has more information on Eligibility. To speak with someone about eligibility, feel free to call the Arc of Monroe’s Community Resource Specialist at (585) 271-0660 x 2581.

http://www.opwdd.ny.gov/opwdd_services_supports/eligibility

OPWDD Front Door

If you are interested in receiving services, one of the first steps you must take is to go through the OPWDD Front Door process. This website provides more information on The Front Door.

http://www.opwdd.ny.gov/welcome-front-door/home

In The Driver’s Seat

In the Driver’s Seat was created to assist navigating the Self-Directed Service system in an easy to use, multi-faceted approach.  Unique features in this site include “First Gear,” an essential tool-kit with resources, tips and insight to give you a better understanding of the road ahead.  Looking for a roommate or someone with similar interests?  The “Registry” will help you connect with others in an easy, confidential format.  Have you developed tools or used resources that can help others? If so, be sure to click on the “Got Tools” box so that we can share them.

http://inthedriversseat.org/

NYSARC

NYSARC, Inc. is New York State’s largest not-for-profit organization dedicated to supporting people with developmental and other disabilities and their families since 1949. NYSARC is the New York State Chapter of The Arc. The Arc of Monroe is a chapter of NYSARC.

http://www.nysarc.org/

Autism Speaks iOS Apps

This is a list of applications for use with iOS-powered devices like iPhones and iPads for people with autism spectrum disorders and their families

https://www.autismspeaks.org/autism-apps

Autism NOW Center

The Autism NOW center provides high quality resources and information in core areas to people with autism spectrum disorders and other developmental disabilities, their families, and caregivers. Autism NOW is affiliated with The Arc.

http://autismnow.org/

Autism Speaks Tool kits

Autism Speaks has put together many tool kits for families. Topics range from advocacy, information for families of young children newly diagnosed, challenging behaviors, and even postsecondary educational opportunities.

https://www.autismspeaks.org/family-services/tool-kits

The Center on Quality and Leadership (CQL)

The Arc of Monroe is CQL certified. This accreditation is one way that Arc of Monroe shows the community its focus on excellence and commitment to being person centered. For more information on CQL, visit their website.

http://www.c-q-l.org/

Future Care Planning: A Roadmap for Family Caregivers

This is a roadmap made for the family caregiver as a workbook to help guide thoughts and discussions about future care planning.

http://sonoranucedd.fcm.arizona.edu/sites/sonoranucedd.fcm.arizona.edu/files/CAREGIVING_Roadmap_021010.pdf

Medicaid Reference Desk

The Medicaid Reference Deck is a tool to help people find out what Medicaid can offer them. The Medicaid Reference Deck is a project of The Arc and the Administration of Developmental Disabilities

http://www.thedesk.info/

My Thinker’s Not Working

‘My Thinker’s Not Working’ is the short title of a report issued by the National Task Group on Intellectual Disabilities and Dementia Practices. The document reviews the main issue facing adults with intellectual disabilities as they age when they are affected by dementia, as well as their families and provider organizations.

http://aadmd.org/ntg/thinker

New York State Inclusive Recreation Resource Center

The IRRC Resource Center contains a wealth of information about recreation opportunities in the state, along with descriptive information about accessibility and inclusion, so people with disabilities can have accurate and specific information to make decisions about recreation.

https://www.inclusiverec.org/

Parent to Parent of New York State

Parent to Parent of New York State builds a supportive network of families to reduce isolation and empower those who care for people with developmental disabilities.

http://parenttoparentnys.org/

A video made by GCCNYW that briefly explains OPWDD’s Front Door Process

https://www.youtube.com/watch?v=zSc_uQXm6fQ

Sibling Leadership Network

The Sibling Leadership Network offers siblings of individuals with disabilities the information, support and tools to advocate with their brothers and sisters and promote the issues important to them and their family.

http://siblingleadership.org/

Upstate state Special Needs Planning

Upstate Special Needs Planning is a comprehensive financial planning group who specializes in working with families who are caring for an individual with developmental disabilities, mental health issues or (TBI) Traumatic Brain Injury. Upstate Special Needs Planning can assist families with understanding and planning for the complex financial needs of caring for a loved one with special needs.

http://www.upstatesnp.com/homepage/

Autism Up

Autism Up is a Rochester based organization with the mission to support individuals with Autism Spectrum Disorder, and their families, by expanding and enhancing opportunities to improve quality of life.

http://autismup.org/

Managing Autism Together Today (MATT)

Managing Autism Together Today (MATT) is an organization focused on supporting parents by creating a local network of people who understand the nature of having children with Autism Spectrum Disorder, and making it easier for families to locate, obtain, and use the community resources available in the Rochester area.

http://www.managingautism.org/